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Caroline's Story

Let's Talk UTI

In March 2016 I was taking oestrogen to combat symptoms of the Menopause. I was unable to tolerate progesterone in any shape or form. I was sent to a specialist Menopause GP who insisted that I have a Mirena coil fitted to release progesterone and to protect my endometrial lining. I was unhappy about this but went ahead with the procedure. The very next day I experienced excruciating pain so went to my nearest A&E department. I was told that I had a UTI and was given three days’ worth of Nitrofurantoin.


I have had that same infection for 8.5 years. I have tried eleven different oral antibiotics, intravenous gentamicin and gentamicin instills directly into my bladder. I know that I have Enterococcus faecalis, Klebsiella and E Coli.


My chronic UTI has completely de-railed my life professionally, socially and in every possible respect. I live a half-life- watching others from the wings, unable to participate due to daily debilitating symptoms. 


I cannot work, I cannot travel, I cannot go out for a meal, I cannot invite friends over, I cannot go to the theatre, I cannot take long walks- every single facet of my life which I previously took for granted has been taken away from me. The toll this takes on one’s mental health cannot be underestimated- the anxiety this infection causes me is with me every single day. Trying to accomplish the smallest tasks takes a supreme effort of will.


The carpet has been pulled completely from under my feet. I just want my life back.

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Break Your Silence and Know Your Choices

Let's Talk UTI is a voice for people who have experienced the misconceptions, mistreatment and lack of education that comes with this misunderstood infection. Because of this experience, we've put together a free Download Library full of resources to bring to the doctor under what could possibly be emotional and physical distress. Share your personal story to help be a part of the movement that's inspiring women everywhere to break the silence.

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